Energy “Use” in the OCD Brain-Very Interesting

I found this to be a real eye-opener for a disorder that seems to be otherwise intangible.

Pet Scan of Brains With and Without OCD

I found this on one of the bazillions of informational  and treatment sites for OCD.  I’ve added a link to it below as it has lots of good, basic information about OCD and anxiety disorders in general.  This is also one of the few sites that actually acknowledges the existence of  “PANDAS”, or pediatric autoimmune neurobiological disorders associated with streptococci, which is the onset of childhood OCD associated with strep throat (to simplify), and a high fever at an early age.  It kinda gets your mind going trying to remember, huh?

Anyway, there’s a lot of good info to explore and ponder on this site.  I’ve come up with some decent questions for our doctor by perusing sites like this.

http://www.hope4ocd.com/autoimmune.php

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6 Responses to Energy “Use” in the OCD Brain-Very Interesting

  1. Vlybbs says:

    My 13yr old daughter was diagnosed with OCD this year, though I suspected it for quite some time. One of those moments where a mother’s intuition is ignored despite the evidence. From what I’ve read from your blog, I can tell this will serve as a great source to me of not only information but also as a place to come to when I feel alone in this as a parent.

    I started my blog but more as a way to keep the extended family in the “know” about our progress as we live in a different state. But it also serves as a way to journal our journey that has only just begun.
    http://obsessingthroughlife.blogspot.com/

    Thank you for being willing to write this blog and lead those of us who are still trying to find our way through this as parents of children suffering from OCD.

  2. Mom says:

    Hi V,
    I appreciated reading your blog and composed a comment, but was unfortunately, unable to post it without compromising my (my daughter’s) anonymity. For some technical reason, I was unable to sign in with my WordPress acct. (one option), and my BlogSpot username is my actual name, which I can’t use here (the privacy thing :) . Anyway, I think you’ll find that journaling and sharing your experience is rather cathartic and knowing you might be a support or give ideas to other parents somehow helps as you’re making mental notes of how your days pan out.

    Anyway, here’s my response to the post on your blog…
    I totally understand what you are feeling and the despair at watching your daughter suffer with these rituals and symptoms. Don’t beat yourself up for not “getting it” sooner. When you’re “not on that page”, it can definitely look like behavior issues. When it finally does click in your head and you put it together, then is the time that you can actually start being productive about helping her, or seeking help. –One thing I notice with my daughter is that the more comfortable in her ritual she becomes, the less she wants to have a doctor help her overcome it. This is just my observation. –Also, have you called your insurance company for a list of participating providers? Our ins. covers unlimited outpatient mental health visits per year, with a regular copay. It might be worth checking into if you haven’t already. — You might want to “stealthily” have a visit with your daughter’s teachers and ask them if they could modify her assignments. She may even need more time for tests, etc. I’ll talk more about this on my blog soon, but most teachers are very helpful and want your child to succeed. –I wish you all the best and will follow along with you on your journey. I hope you will follow along with me on mine as well! — Mom

  3. Vlybbs says:

    I totally understand the anonymity issue. No worries! I don’t use our real names either.

    Thank you for the advice on the insurance. I’m actually going to call my provider tomorrow to see if they will allow me to pay out of pocket and then reimburse me if I choose my own therapist. We’ll see.

    About the teacher issue, middle school teachers are killing us! The homework load is massive and my daughter worked for 2 hours on an assignment one night (her friends only spent 45 minutes on it) only to have her math teacher give her a zero for no name. She was beyond devastated and the frustration and setbacks she endured was terrible. The punishment did not fit the crime and the teacher was absolutely rude when we asked her to reconsider considering our daughter’s needs. It was very frustrating indeed. I’d love to hear your thoughts on how to handle or approach teachers. I was considering a conference but did not know now to approach it or what my options were.

    Thank you for responding and I look forward to learning a lot from you. :)

  4. Mom says:

    I’m SO sad to hear that your daughter has got one of those teachers that seems to be bent on making a point, not just teaching the material. I have scheduled many an appointment with the teacher and principal for situations just like this. I usually start by stating my case to the teacher in an email with a cc to the principal. I always state only the facts as we see them, advocating for my child and stating things I know to be true, such as, ” I know that you and I share in the same goal here, which is for my daughter to succeed and to gain a full understanding of this subject.” I made it very clear to them that my expectations as a parent were for my daughter to be “taught”. If she did the assignments, she should get the credit, as any student should. It may be time for him to re-assess his policies re: compassion of all his students, not just those with special needs. He seems to be getting caught up in his rules and details and forgetting how important it is not to break the spirit of his students. I, personally, wouldn’t let this particular “nameless” assignment issue go until she got full credit, no matter how “sticky” it got. It may require printing out some material on kids with OCD and how it affects their school work. Whatever communication you send, cc the principal…always be friendly and factual and just joining him in the effort to help your daughter succeed. Make sure he knows how much you appreciate what he does and that you look forward to working together with him on your daughter’s behalf. For future purposes, you need to be sure that the principal creates a “file” for your daughter. This will include copies of emails, printouts you may send, and information re: “Section 504″ for your daughter. I’m planning on doing a separate entry that will include this in a day or so, complete with links.

    Anyway, I think sometimes teachers don’t realize what these kids’ lives are like. It may be time to have a sit-down in the principal’s office. I always have copies made copies for whoever was going to be there, and lists of my daughter’s symptoms (highlighting the ones that might affect her school work). You may (soon) want to schedule the meeting that sets up her Section 504, so the principal will schedule it with additional school professionals. This will guarantee that some accommodations are in place for your daughter’s educational needs as long as she’s in public school.

    Good luck to you. I’ll try to get my next blog posted soon. I hope this helped!

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